Survey For Children/adolescents With Siblings

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My name is Jared Shiff, M.S. and I am a doctoral candidate in psychology at the Ferkauf Graduate School of Psychology at Yeshiva University. For my dissertation research, I am conducting a study entitled, “An Examination of Quality of Life and Perceived Social Support Among Children and Adolescents who have a Sibling with a Cancer Diagnosis.” The purpose of this research study is to measure aspects of quality of life and social support in children/adolescents. The study aims to provide useful information to help support siblings of individuals with cancer. There will be a second comparison group of participants in this study who do not have a sibling with cancer.

Participants must be between the ages of 8-18 and in grade levels 3rd-12th.

· One group of participants will include healthy children and adolescents who have a sibling (can be either a child/adolescent or adult sibling) with cancer or who is a cancer survivor. *Note: children and adolescents must already have knowledge of their sibling’s cancer diagnosis as this study will inform them.

·  A second group of participants will include healthy children and adolescents who have healthy siblings without a chronic medical condition (e.g. cancer, diabetes, etc.). 

Multiple siblings from the same household are welcome to participate. Siblings can include biological or adopted siblings, half-siblings, step-siblings, and/or foster-siblings.

If the above enrollment criteria are met, please consider participating. Participation in this research includes completing several anonymous questionnaires online via Survey Monkey. The surveys take approximately 15-30 minutes to complete. 

The first 30 accepted participants in each of the two groups will receive a $10 Amazon Gift Card upon completion of the survey. *Please be sure to complete the survey in its entirety, including the Pediatric Quality of Life Inventory and the Child and Adolescent Social Support Scale. A maximum of 30 gift cards will be distributed in each group. After you have completed the questionnaires, follow the directions at the bottom of the survey to enter your email address in order to be eligible to receive a $10 Gift Amazon Card.  *Please note we are almost at capacity and once we receive 30 participants in each group, a $10 Amazon Gift Card  will not be distributed to you even if you have completed the survey. 

  *It is easier to complete the survey on a computer (not on a smart-phone).

Please click on the links below to find additional information, informed consent, and surveys.

Participants ages 8-12:

· Parent Consent and Child/Adolescent Assent (participants ages 8-17): https://www.surveymonkey.com/r/PCYYBYT

· Child Survey and Parent Demographic Questionnaire (for participants ages 8-12): https://www.surveymonkey.com/r/CCVBSF5

Participants ages 13-17:

· Parent Consent and Child/Adolescent Assent (participants ages 8-17): https://www.surveymonkey.com/r/PCYYBYT

· Adolescent Survey and Parent Demographic Questionnaire (for participants ages 13-17): https://www.surveymonkey.com/r/CC76B23

Participants age 18:

· Participant Consent (participants age 18): https://www.surveymonkey.com/r/PCKQSWN

· Adolescent Survey and Demographic Questionnaire (for 18 year old participants): https://www.surveymonkey.com/r/CC8TPRS

If you have any questions about this study, you can contact the principal investigators Jared Shiff , M.S. at 516-425-3807 jared.shiff@mail.yu.edu and Esther Stavrou, Ph.D. at 646-592-4537 esther.stavrou@ yu.edu. You may also contact the Institutional Review Board (IRB) of the Albert Einstein College of Medicine at 718-430-2237.

Best,

Jared Shiff, M.S.

Compensation: The first 30 accepted participants in each of the two groups will receive a $10 Amazon Gift Card upon completion of the survey. A maximum of 30 gift cards will be distributed in each group.

Location: Refer to message for links based the age of the participant